We just got back from MUSC. Daddy got in his room about 5:00 this afternoon. After his and Wilson's appointment this morning, we messed around Charleston waiting for them to call to say they had a room for him. Well...finally Momma called them about 4:45. Long story short, they had been calling their home number all day. Great doctors...sometimes not so great communication. Anyway, it worked out because really he would've just been sitting there not doing much all day anyway. He is in room 5038 and his number is 876-7538 if you would like to give them a call or they have their cell phones as well.
Tomorrow Daddy will begin chemo. He will be taking the chemo he has been taking for the last few months. This is the clinical trial phase of the transplant. Normally, transplant patients are giving Melphalan alone. He will be taking Carfilzomib along with the Melphalan to see if the two will be more effective together. I know a lot of you don't care about all of this technical stuff but please remember that one day someone may be clamoring for information on Myeloma just like we were three short years ago, and I want to help them in any way possible. Wednesday he will get the other chemo, Melphalan. This is a massive dose and will kill his entire system pretty much.
With that in mind...some have asked can he have visitors? Yes, he absolutely can and would love that I am sure. BUT...he cannot have visitors who are sick or that have been around someone who is sick. Even a common cold. I am not trying to be rude but please keep in mind that Daddy, nor the other patients on the unit, will have an immune system. Even a common cold can have a devastating effect on them. But, if you are healthy, please feel free to go by and see them. He also cannot have fresh flowers or fruit on the BMT unit.
He will have a day of rest Thursday and get the transplant on Friday. This week will probably be okay and his numbers are expected to bottom out next Wednesday or Thursday.
Daddy never complains and we were trying to tell his doctor that tonight. They will ask how he is and he will say fine. So, we were warning her. He chimes in and says well I really didn't have pain last time I just felt like I was going to die but other than that I was fine. Well....there you go! That's Daddy! He is so strong and handles things a lot better than we do. Please lift him up and Momma too. The caregiver has a lot of responsibility and she is understandably nervous and a little sad. But, God is good and He provides all our needs so we are already praising Him for not just good, but GREAT results!
~much love to you all
PS Wilson had a great EKG and ECHO today and if his 24 hour monitor looks good we don't go back for 4 months...God is good!
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