I apologize for taking so long to update. We have been so busy and this week is kind of a blur. Daddy did well with the chemo Tuesday and Wednesday. Joey and Deanne went to visit Wednesday and that thrilled Momma and Daddy. And, Daniel and I took the children to see Nonnie and Poppie Wednesday night and you would have thought we hadn't seen them in a year. My children are use to seeing them every day so this is very hard for all of us. Daddy won't follow the rules though and hugs and kisses all over them. He got very upset with me because I asked the nurse if he had to wear a mask and she made him. He doesn't understand how dangerous any type of infection is for him right now. Because his counts will bottom out this week and he has no immune system, we probably won't be taking them back. Thursday was his day of rest but he had a bone marrow draw that he agreed to do to help with the clinical trial he is a part of. It was optional but he wanted to do it to hopefully help with finding a cure for this awful disease. He said it was just another day in paradise when I asked him how it went :)
Thankfully, there are several familiar faces from last time still working in the unit. Ashley, which Daddy affectionately dubbed "the mouth police," did his draw. She comes by every morning at 6:30 and checks his mouth and he really likes her. Friday was his "new birthday," as they refer to the transplant day. It was uneventful which was a good thing. All Daddy talked about before he came was getting a room with a view. He told the transplant coordinator to make sure he was on the other side of the hall so he could see the water because all he had to watch last time was construction. Well, he ended up right back on the "bad" side of the hall. But, on Friday, they unexpectedly moved him to the other side and he has a beautiful view of the harbor. He was excited about this. Today he was supposed to a drug that is new since the last transplant that will make his stem cells begin regenerating quicker. Well, because he is inpatient, insurance denied payment. So, it was up in the air as to whether he would get it because apparently it is VERY expensive. But, God always makes a way. Because he is a part of the clinical trial, they covered the shot. Praise the Lord. This should help his immune system to come back sooner and prevent infection from occurring.
The children and I were in town last night because I had to take MC to the doctor. It was heartbreaking to be that close and not be able to go see them. At the time, we didn't know if what she has was contagious. Thankfully, it isn't contagious, so I was able to go spend the day with them today. They are very homesick and a little weary but we had a good day together. Daddy can't taste anything but we did get him to eat a doughnut and five chicken nuggets. He said we could've fed him a napkin and told him it was a doughnut and he wouldn't have known the difference.
Bless his heart...he is such a good sport and so is Momma. She doesn't complain about watching sports or westerns or whatever he wants to watch all day. She hasn't left the hospital since Tuesday. She is truly his rock and they are both my heroes. I am so thankful to have such Godly examples set before me and my children. I know God has a plan in all of this and I choose to believe that His plan is to heal my Daddy. That's what I am most thankful for in this Thanksgiving season. Please continue to lift him up as this is typically the calm before the storm. However, we have been praying and rebuking all of the things they have told us to expect. Thanks for praying that with us.
~much love to you all!
PS...his room is now 5021 so the number would be 876-7521.
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